It seems time for an update.
Many of you will know that my husband Dion lives with Multiple Sclerosis. On January 25th of this year he entered the hospital. That morning Dion could not get out of bed, and so I called an ambulance. He has not lived at home since.
At the time, Dion’s medical team hoped that some of his symptoms would settle and possibly return to the previous normal (which included being able to transfer from a mobility scooter to bed, for example). As of today, Dion is in a wheelchair and requires a higher level of support, including assistance with transfers. He talks about that here: https://www.dionoxford.com/dependancy-287-days-away-from-home/
After discussing all of the options we decided that the most obvious next step in a sea of unknowns was to renovate our home. This decision was not made lightly. I often tell people that when my mother was alive, we considered what was necessary to have her in the house. For her, the only requirement was a ramp and so that is what we did. For Dion, a larger number of things are necessary, including: a lift, a hospital bed, and a barrier-free washroom.
Joanna Moon, my co-worker at The Dale and dear friend eagerly set up a GoFundMe page on our behalf back in February, on Valentine’s Day to be exact. We have been overwhelmed by the response of people wanting to help, either through a donation, a meal delivered to our doorstep, assistance with demolition, good thoughts and prayers…the list is long and saying ‘thank you’ feels inadequate.
I am very grateful to have my brother Logan as the contractor on this project. He is working hard to coordinate the many trades people that are coming in and out of the house on a near daily basis. Cate and I have continued to live at home, given that the bulk of the work is happening in the basement. We are just needing to make friends with the dust.
As I write, the status of the basement is this: the plumbing and electrical have passed inspection, there is a new floor and the walls have been framed. A hole will be created in the floor in our dining room this week to accommodate a lift. Things are happening.
Outside of the renovations, there are meetings about what kind of care Dion requires. We agree that I cannot be Dion’s full-time caregiver, and with him on long-term disability it is important that I continue to work. There are pieces of this puzzle to figure out. Unfortunately, it is hard to plan when the system cannot guarantee the level of care they will supply at the present time.
Which brings me to this request: please pray for us. For Dion, for Cate, for me. I know a lot of people are, and for that I am grateful. We need prayer, not just for the renovations, but for what life looks like after they are complete. It is unlikely that there will not be glitches. 2018 has been a brutal year in many, many ways. As Dion and I both acknowledge, there is a lot of loss, too much to process, and a deep need for things to feel a little more normal.
Of this I am confident: God is present in this journey. I trust that we are being guided through the wilderness. In its midst there is sorrow, lament, joy, gratitude, and much hope. What a complicated thing life is.
10 thoughts on “A Life Update”
Praying, Erinn. 💜 And my home is always open for you if you need a retreat space.
Thank you for this Erinn. I do pray and it’s good to have the updates from both of you to remind all of us to do that very important thing, especially when we can’t do much else, not being in your immediate area.
Love and blessings,
Prayers for you all on a regular basis. Lots of love and hugs
Erin, will you qualify for any home nursing? Esp at night time? then for any care during the day? I pray that some funds can be assessed through the government.
Then, with all , .. and that is hundreds of people, who have come to donate, and have helped in many ways, …. I’m wondering, if a bunch of us could be put into a Weekly list, esp when Dion first comes home, to help adapt to the daily challenges, while Horus at work? I would Be willing to help, and be in this list, esp considering I’m a RN, and have helped with many people , including high school friend , who was a paraplegic and was able to , eventually, live alone! God hear and answer all our prayers! Kimberly
Thank you Kimberly! We are in the process of putting together a care plan. As we understand more of what will be available to us (or not) we will let you know. Grateful for your prayers and offer of support.
I am praying for all of you
Thanks for pointing me to dion’s blog too so I can get his perspective
Blessings be upon all of you, all so beloved of God.
Thank you for praying Sue! I think of and pray for you often.
Blessings Erin! May I say, that is the cleanest reno space I have ever seen!
2018 was a year of patient rebuilding for my family as well, for very different reasons, but a journey nonetheless. Praying that when the dust settles, you, Cate and Dion find Peace and Magic in your new beloved space.
Please tell me how I can access your Go Fund Me page…
Sarah from the Cafe xx
Thank you Sarah! Props definitely go to my brother for being the cleanest contractor!
Praying for you in the journey your family is on. Peace to you. It seems 2018 was quite a year for many.
Here is the link to the page:
Thanks again Sarah. Grateful to hear from you.